So here we are, in 10 min. heading to St. Louis for the first of many surgeries of her facial reconstruction. Just looking at her you would never know the major deformity underneath that bright, beautiful face you see when looking at her. It's truly amazing. She is missing so much of her upper and lower jaw that she will need bone grafting in a few years to create a jaw. She does not qualify for distraction. She does not have a mandibular joint. There is facial tissue missing as well.
Thank you for your prayers today as we travel and tomorrow as she has her surgery. I will try hard to post an update. I have no idea what to expect tomorrow. I have been encouraged by those of you who have shared your stories about your children who have gone through similar medical situations.
Tomorrow Lucey with have her lateral cleft lip repaired and her ear remnant removed. We are going the ear prosthetic route with Lucey. I'll explain more about that in another post.
I know I still have not shared the rest of our St. Louis visit from back in May...My friend's took care of me and I have some great photos I want to share....but the day at the hospital was difficult so I have been dragging my feet on revisiting that place in time.
Also, Christian has strep throat again. This is his third time in 8 weeks. We are concerned about him. He is a trooper. Please pray for his healing.
Thank you again for your prayers....
Much Love,
Beth
We will be praying for you all!! I'm so happy to hear about the hole in Lucey's heart. What a blessing!!
ReplyDeleteYes, it is a stressful time, and I would tell you not to even try to go back to May and post your thoughts. I find that it's sometimes better just to get through those times and move on. Your friend's comments about Lucey's heart were very thoughtful and sweet - I think she was spot-on with this one!
ReplyDeleteOur thoughts and prayers are with Lucey and your family.
Blessings,
~Linda