A Little Off Balanced and it's Okay

Lucey and I were out the door bright and early yesterday morning for her neurology appointment. Her cranio-facial team recommended she be seen by a neurologist to make sure she is functioning normally. It's really the last big appointment in the string of appointments she has had since she has been with us. It feels good to have checked this block.


Lucey was playing with Adam's wool scarf on our 1 hour drive to the appointment. She was playing peek-a-boo and wrapping her head in it. Look at that crazy hair.

She always has so much fun with this type of wall puzzle. I bet a few of you are acquainted with these.

She was jumping all around....so why are we here?

Then, she decided not to cooperate. Not even candy was enticing her. When the sweet older Doc asked her to perform a task she would simply say, "no." She would have no part in hopping on one foot, running down the hall, walking across the room etc....he did the best he could and mostly took notes. Together we decided that what ever is going on, it's mild. Lucey has improved so much since she came home. She used be be very unstable on her feet. She took quite a few tumbles. She is cautious. We are having a dilemma at night. She is completely trained. She wakes us up at about 3:00 a.m. to go to the bathroom. She is very wobbly and shaky as we walk her to the bathroom. I have been working with her to do as much as she can by herself but she trembles. And...she is so happy and smiley in the middle of the night. It's quite funny. The Doc told us not to worry about it. It could be a vestibular issue. There is a possibility that there is nerve damage in the inner ear. The next set of tests are too invasive and it really doesn't seem necessary at this point. So I'm at peace with that. I'm going to put a little potty chair in her room so she doesn't have to go far. We will have to put low lighting in there too since her room is so dark. She will have to adjust. I know she can.

Thank you for your prayers. I can feel them. God is so good to us. I'm humbled.

xoxoxo

Beth